We do it cause we do it.

What do you call a milestone you never wanted to achieve?

But he made it.

He is here despite all the odds against him.

My second day off in 83 days and it wasn’t by conscious choice, I was catatonic.

I’m exhausted, physically and emotionally and pumping is relentless.

People are still moving freely throughout the ward which is frustrating.

Looks like a cross between a lash curler and a medieval torture device.

Woohoo thank you all for your positive thoughts that you put out into the universe for us.

Advocating for Kayden and sometimes myself too, forces me to cross lines I don’t want to.

I wish we were going to the right place.

The only thing more I could do is lay by his bedside until the police have to drag me out of NICU.

I don’t want to have to be this strong.

It’s too hard for me to talk. I have no more to give.

The look on everyone face is clear through the mask, this is serious.

Weight gain 1110grams, we are back in the club to stay!

Everyday is a hard day even the so called quiet days

Honestly, I rarely know what day it is.

The condition inflames intestinal tissue, causing it to die.

There is this scary feeling when you get a few quiet days like someone following you in the night.

Sylvie’s in one place, Kayden in another, Lee and I both back and forth.